Registers
SCN2A registers
Patient registers are an essential element
to facilitating new drug development. The SCN2A Natural History Study (NHS) by RogCon and the inclusion of the gene SCN2A in Simons Searchlight are two patient registers available to the SCN2A community. SCN2A Europe encourages everyone to participate, as such registers are a critical part of designing and implementing clinical trials. They also provide important information to regulatory bodies like EMA in Europe or FDA in USA. The SCN2A NHS and Simons Searchlight share their information.
